New 2019 Cancer Survey

New 2019 Cancer Survey

First Survivor Views Survey Highlights Barriers to Addressing Side Effects of Cancer Treatment

Washington, D.C. – Barriers to accessing appropriate therapies to address the physical and psychological side effects of cancer treatment continue to persist for patients and survivors, according to survey results from the American Cancer Society Cancer Action Network (ACS CAN).

Survivor Views, an initiative launched by ACS CAN in January, established a national cohort of cancer patients and survivors to complete a series of six individual surveys focusing on a range of public policy issues important to the cancer patient and survivor community. The results of the first survey, which are being released today, focus on patient experiences treating the symptoms and side effects of their cancer and access to supportive or palliative care services.

The survey found patients and survivors experience a wide range of symptoms and side effects as a result of their cancer care. While effective treatments exist for several of these physical and psychological side effects, the survey results indicate many patients and survivors are not accessing them for a variety of reasons.  Fifty-five percent of respondents reported physical limitations or difficulties completing tasks as a result of their cancer care, but only 26 percent reported being referred to physical, occupational or speech therapy by their health care provider. Similarly, 51% of patients reported anxiety or depression as a result of their cancer while only 10% reported being referred to a mental health provider for additional therapy.

Many survivors also reported adverse symptoms or pain well after their active treatment concluded. Of survey respondents who reported pain or other symptoms during treatment, two-thirds noted the symptoms resulting from their cancer or treatment continued well after active treatment concluded.

“Too many cancer patients and survivors are not receiving the appropriate treatments and therapies that would alleviate the side effects of their cancer care,” said Lisa Lacasse, ACS CAN president. “At a time when our health care system is facing incredible pressure to evolve, it’s clear that our approach to health care must become more holistic and provide patients with better coordinated options to alleviate the physical and psychological side effects of a cancer diagnosis. This coordinated, patient-centered care must continue well into survivorship as patients continue to live with the lasting side effects of their cancer and its treatment.”

Barriers to accessing prescription drug treatments to alleviate pain that often accompanies cancer treatment were also apparent in the survey results. Over half of cancer patients or survivors participating in the survey who have been prescribed opioids in the last 12 months voiced concern about their future ability to access appropriate pain medications. More than 40 percent of these respondents had already experienced barriers to accessing pain treatment.  Respondents reported these barriers had direct adverse impacts on their lives, including inability to work or participate in family or social events, setbacks in their ongoing cancer treatment, and the need for additional emergency care to treat uncontrolled pain.

Survivor Views is providing ACS CAN with timely, firsthand information that will drive our advocacy efforts forward, giving cancer survivors a voice in the issues directly affecting their lives,” Lacasse said. “The release of the first survey results focusing on patient experiences with treating pain and other side effects associated with a cancer diagnosis provides valuable insight into the shortcomings patients face in trying to manage their symptoms on a day-to-day basis and highlights that symptoms can extend months and years after treatment concludes.”

I found these survey results to be right on. Too many cancer survivors continue to deal with pain and side effects years after treatment. Now there’s proof! Thank you ACA for doing this enlightening survey!

Never Give Up!!!


Don’t Be Fooled: It’s Not Health Care — It’s Death Care

Don’t Be Fooled: It’s Not Health Care — It’s Death Care

Have you read the June 2017 AARP article? Find Out Who Voted For The Health Care Bill: AARP opposes act it calls an “age tax” on Older Americans. If you missed it, it was a stunning article that affects ALL the baby boomers. Here’s what it said:

“The U.S. House of Representatives on May 4 passed the American Health Care Act by a razor-thin margin: 217 to 213. It includes an “age tax” that AARP says would add as much as $13,000 to the cost of insurance for those 50 to 64, and would discriminate against people with pre-existing conditions such as cancer and diabetes. What’s more, we believe it would cause millions of Americans to lose coverage and put Medicare in worse financial shape.”

This isn’t health care — this is death care! Especially for people like me who have diabetes and cancer. I want to thank the 217 representatives who’ve voted for my death! That’s right folks, those Republican representatives who you voted in last year are calling the shots and they want those of us with diabetes and cancer to ill-afford treatment and medications and, ultimately, die. They’re playing “God” with our health care and I can think of no greater sin than taking the lives of others. Doesn’t world history hold numerous stories of the destruction of humans by the millions? Why do we keep making the same mistakes over and over again? I’ve tried to stay out of politics in this blog but, day after day, I’m inundated with news like this that really frightens me. I know many people with diabetes and cancer, some are close friends, and all are at-risk because of our current legislation.

DO YOU CARE THAT THIS IS HAPPENING? If so, I really want to know how you’re really feeling about this American Death Care Act? 

Don’t be fooled into thinking this type of health care is great because it isn’t health care at all — history calls it GENOCIDE — the systematic killing of, or a program intended to destroy those of us who are sick and ill!

Bless us all!

Never Give Up!